While results fluctuate and my anxiety remains high I see the war that is taking place. It seems that the largest facebook ccsvi community has been infiltrated by spies. The protection of financial interests are nauseating. Perhaps it is also protection of ego, how such a simple theory can bring down an empire.
It appears now that as soon as someone states that they are officially testing and even worse treating the issue, they experience the wrath of the establishment and are forced to stop for variety of trivial reasons. I never imagined that the possibility of help for such a devastating disease be so suppressed. The internet has definitely changed the power/knowledge dynamic, yet even that does not include everyone.
Bottom line is that words do not matter, ask for this by other names, escape the grip of this industry that wants to give you poison and watch you slowly die in agony. "Venous blockage, venous stenosis, venous drainage, venous return" anything other than ccsvi, more importantly stick to angioplasty not liberation.
Meanwhile, i notice that i am standing better, with my entire foot. Balance is better, shakes and bladder functions improved. Perhaps this is anecdotal, but i am hungry more often.
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